I began my journey with the Cystic Fibrosis Foundation in 2010 when my nephew was diagnosed. Over the years, my involvement has expanded. Check back here to learn about my involvement.
A few weeks before VLC 2024, I received an email from the executive director of the San Diego and Hawaii Chapter. She asked if I was available for a short call with herself and the CFF organizer of the VLC about a “special project” for the VLC. Intrigued, and always willing to help out, I said of course. The call was quick, and left me reeling! I was asked if I would be interested in co-chairing the event in 2025. Having had no idea that this particular ask was coming, I was floored and certainly honored to be asked. My…
I have been attending the Cystic Fibrosis Foundation’s (CFF) Volunteer Leadership Conference (VLC) since 2015. This conference is attended by hundreds of volunteers, along with staff of the CFF, and is a networking conference that allows us to share information, to celebrate advancements, and re-commit to the ultimate mission, to find a cure for cystic fibrosis. There are several awards presented at the VLC, including the Alex Award. The Alex Award was established by the late Frank DeFord in honor of his daughter Alex who passed away from cystic fibrosis at the age of 9. The award honors a person…